OK HopeMob Family - here's what we're going to do!
Let's raise $2,500 to buy Adelle a reliable used car. We already have our eyes on several.
Here's the letter we got from Jade's mom, Adelle...
My daughter was recently diagnosed with Oculodentodigital Dysplasia (ODDD) which is a VERY RARE CONDITION. 1 out of 10 Million has this condition. Jade suffers with major teeth issues which requires surgery that can only be done in the hospital due to her Narrow Airway, Underdeveloped Nasal Passages and Major Sleep Apnea. She has both types of sleep apnea (Obstructive & Central) and sleeps with a CPAP machine. She also has Microcornea which leads to Glaucoma... Pressure behind her eyes,Incontinence, Weakness & Spasms in both arms, hands and legs; causing her to scream out in pain & asthma.
Since Jade's condition is so rare she constantly has to see a LARGE Amount of Genetic Specialists and other doctors (15).
On 2/2/12 (Jade's Birthday) she had to have oral surgery in the hospital. They ended up removing 10 of her teeth (7 baby teeth & 3 permanent back teeth) due to her condition with ODDD. Jade stayed POSITIVE through it all & wore her Happy Birthday hat into the hospital. Now, Jade's mouth no longer causes her pain; however, her diet has changed. She now eats soft foods.
A couple days later, our car had what looks to be an electrical fire. We take taxi's when needed because the walk to a bus stop is too far for Jade to walk to. We still feel very BLESSED because we have each other!
For 7 years Jade was labeled as having an "Unknown Syndrome" In April of 2011 she was finally diagnosed with ODDD. Now we are doing everything to become more & more educated about Oculodentodigital Dysplasia (ODDD).
Please keep Jade & myself in your prayers as we continue to get medical attention for Jade and help to educate her doctors about this disease. This disease TOTALLY changes the life of a person with ODDD as well as their family...Emotionally and Physically.